CDKL5 11 Year Old Girl

I am looking for a policy for $15000-20000 for a 11 year old girl with CDKL5 ( see below). I would be thankful for any ideas.


CDKL5 is a rare X-linked genetic disorder that results in early onset, difficult to control seizures, and severe neuro-developmental impairment. It is an orphan disorder, however more children are being diagnosed as awareness of CDKL5 spreads.

CDKL5 stands for cyclin-dependent kinase-like 5, and is located on the X chromosome. The X chromosome is one of the sex chromosomes; females have two X's and males have one X and one Y chromosome. The letters are
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